Beth Purvis, aka Bowel Warrior, writes for the Indie as a forty-yr-old married mom of two from Elsenham dwelling with stage four cancer…
I have lost keep track of of the times – hasn’t everyone? Guilt-free of charge lie-ins each and every morning. Swap on the news, which would seem to be on a loop aside from the odd nugget from across the pond what will their esteemed chief entertain us with nowadays?
In this weird new globe the place almost nothing would seem to alter, a whole lot has basically transpired for me since I final sat down at a laptop and tapped out a several phrases to share.
Following affirmation that my cyberknife remedy – a variety of qualified radiotherapy – has been permitted, it is by no means as very simple as just receiving previous the funding hurdle.
The doctor carrying out the futuristic remedy required an up-to date CT scan to test almost nothing has modified even though we have been waiting around. Truthful ample, will make sense… so I wait for a date.
As a substitute of grabbing the write-up as before long as it arrives, I am waiting around for a phone call – yep, almost everything is now completed substantially much more efficiently by phone and a stick to-up e-mail to confirm. It only took a pandemic to change the NHS into this century.
When an unidentified amount pops up, I respond to in the hope it is the hospital and not a person calling about the incident I did not know I was included in. It was a slight shock to be informed I was booked in for surgical procedures in 4 days’ time.
Properly, erm, dangle on – can a person test remember to? Is cyberknife still an possibility? Which is safer at the instant? Do I get a preference? If I go for cyberknife and it doesn’t perform, can I still have surgical procedures at a afterwards date? “We’ll get the surgeon to chat with the radiologist and request him to call you back.”
In this new, much more contemporary NHS, appointments and discussions with consultants are no longer a journey to the hospital to sit in a packed waiting around room for two hours to get your 5 minutes with the doctor. No, they phone you, and you can be anywhere as extensive you have your phone with you. I say you could be anywhere, but at present the preference is bedroom, kitchen area, dwelling room, bathroom or backyard.
My surgeon named me to chat as a result of the pros and disadvantages of each and every remedy and the threats yes, all those additional threats with Covid-19 make an overall look. He confirms I can decide on between cyberknife and surgical procedures, and if in the not likely function cyberknife is unsuccessful, surgical procedures stays on the desk.
We sensibly concur that one more CT scan is wanted before we can decide which remedy is the improved, but even he is erring in the direction of not cutting me open up and getting me continue to be in hospital for a 7 days.
Sadly, I simply cannot stay away from basically going to the hospital absolutely and have had to make two visits to the Royal Marsden for scans. I wanted to be organized. No longer does my ‘leaving the house’ test checklist consist of purse, keys and phone – no, no, it is now purse, keys, phone, anti-bac gel and confront mask.
I did not fancy the health-related confront masks, so I acquired myself a little something substantially much more trendy, enjoyment or quite possibly horrifying. My partner Richard reckons I glance like a little something out of Mortal Kombat in my new confront equipment, even though mates have proposed it is much more The Silence of the Lambs… move the Chianti! Possibly way, I’m ready to continue to keep kicking cancer’s arse.
Back again to the hospital visits. For starters, that all-important CT scan which unveiled the tumour in my right lung hasn’t actually completed substantially and can still be attacked by cyberknife. It also confirmed a little something new in my still left lung, but the hospital are getting non-committal about what they feel it is so we are just going to look at that for now and see what it does.
Secondly, for a planning scan for the physicians to perform out the exact dosage of radiation to zap me with, amid other things. Even though I was there I obtained three small tattoos to assistance line me up in accurately the exact place for the remedy as I was in for the scan. I bought my remedy dates, way too: 8 classes in just underneath three weeks, starting up on Might 12 and ending on June one.
I have a several weeks to unwind now and aim on making an attempt to property-school the youngsters even though honing my capabilities in the kitchen area as if I have been aiming for star baker on The Wonderful British Bake Off, just like everyone else.
So, of course, I get on with getting a domestic goddess and perform in the direction of Ofsted Remarkable position by indulging my ten-yr-old daughter in her want to have a spa working day.